Parkinson’s dementia: symptoms, support and how to strive for better care

Rowan Wathes

Associate Director, Parkinson’s UK

Although many people are aware of both dementia and Parkinson’s, it’s less well-known that people with Parkinson’s are more likely to develop certain types of dementia.

Around three in 10 people with Parkinson’s have Parkinson’s-related dementia.  There are two main types of dementia that can affect people with Parkinson’s — Parkinson’s dementia and dementia with Lewy bodies. These two have the same symptoms.  

Parkinson’s dementia and dementia with Lewy bodies symptoms 

• Difficulty with visual and practical tasks, such as reading clocks or putting on trousers correctly 
• Slowness in thinking, difficulty finding words or trouble concentrating 
• Changes in thinking during the day: sometimes being alert but other times being confused 
• Changes in sleeping patterns (for example, taking more naps during the day despite getting a normal amount of sleep) 
• Visual hallucinations and mistaking objects for other things (for example, a pile of clothes might look like a dog) 
• Being less engaged, or finding you do not have as much interest in the activities you used to enjoy (apathy) 
• Anxiety, depression or feeling agitated 

Forgetfulness does not necessarily mean
someone has Parkinson’s dementia.

Getting help and support for Parkinson’s dementia  

It is important to note that forgetfulness does not necessarily mean someone has Parkinson’s dementia. If you suspect that you or a loved one is showing signs of the condition, consult your GP as soon as possible.  

Parkinson’s UK offers a range of support for people with Parkinson’s and their friends and family — from online advice and a free, confidential helpline to local support groups.  

Help improve care for Parkinson’s dementia   

Research from Parkinson’s UK found that only 14% of health professionals feel they have sufficient training in Parkinson’s-related dementia, and 60% say they need more. 

Join Parkinson’s UK, Alzheimer’s Society and Neurology Academy in urging the Secretary of State for Health and Social Care to fund training in Parkinson’s-related dementia for health professionals in England by adding your name to a joint online letter that can be found on campaign.parkinsons.org.uk.